RealTalk MS
RealTalk MS
Navigating multiple sclerosis is easier when you understand the science behind it. Join host Jon Strum each week as he translates complex MS research, treatment breakthroughs, and healthcare news into clear, accessible language. Whether you’re living with MS, caring for a loved one, or looking for answers, RealTalk MS connects you with top neuroscientists, advocates, and the information and insights that matter most to your MS journey.
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July 20, 2026

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom
RealTalk MS
Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

If you've spent any time at all living with or caring for someone with multiple sclerosis, you know that medical textbooks and information-filled websites can give us facts, figures, and symptoms, but they rarely capture the sometimes messy, sometimes overwhelming, and sometimes darkly funny reality of what it actually feels like to get a diagnosis of MS and realize your life has suddenly shifted under your feet.

Our guest, Liat Shalom, was diagnosed with MS in 2021, at the age of 30. Instead of letting that diagnosis define her, Liat picked up her pen and created Unravelled—a groundbreaking graphic memoir that refuses to sugar-coat the MS experience.

Unrivaled

For about five years, we've known that the Epstein-Barr virus (EBV) triggers MS. We'll explain what biologists just discovered about how EBV triggers MS, and what that could mean for future treatments.

We're sharing evidence from an important study that shows a simple blood test is as accurate as MRI in determining whether someone is experiencing a relapse or a pseudo-relapse.

We're sharing details of a study showing that virtual reality (VR) therapy is effective in treating MS-related brain fog.

And if you're a woman between the ages of 45 and 60 and you're experiencing perimenopause, we'll share an easy way for you to participate in MS research without leaving home.

We have a lot to talk about! Are you ready for RealTalk MS??!


This Week: Unravalled, Liat Shalom's darkly humorous graphic novel about her MS journey :22

Scientists discover how the Epstein-Barr virus triggers MS 1:53

A simple blood test can determine whether someone is experiencing a relapse or a pseudo-relapse 4:08

It's time to support the National MS Society's $119.6 million active investment in MS research 6:58

Virtual reality therapy can improve MS-related brain fog 9:16

An opportunity to participate in MS research for women between 45-60 who are experiencing perimenopause 11:41

Liat Shalom discusses her journey to an MS diagnosis that led her to create Unravalled, a darkly humorous graphic memoir 13:11

Share this episode 30:32

Next week 30:52


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Just copy this link & paste it into your text or email: https://realtalkms.com/464

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes at www.RealTalkMS.com

Unravelled: The Story of an MS Warrior by Liat Shalom
https://unraveledgraphicnovel.com

STUDY: CD4+ T-Cells Reactive to Epstein-Barr Virus Late Lytic Antigens are Enriched in Individuals with Multiple Sclerosis
https://www.science.org/doi/10.1126/scitranslmed.adz6566

STUDY: Utility of Multi-Analyte Protein Assay to Distinguish Multiple Sclerosis Clinical Relapse from Pseudoexacerbation
https://link.springer.com/article/10.1007/s40120-026-00984-2

STUDY: Effectiveness of Immersive and Non-Immersive Virtual Reality Interventions on Cognitive Function in People with Multiple Sclerosis: A Systematic Review
https://www.mdpi.com/2077-0383/15/12/4534

PARTICIPATE IN RESEARCH: Perimenopause and Multiple Sclerosis
https://www.nationalmssociety.org/news-and-magazine/news/ms-study-alert-perimenopause-survey

STUDY: Effectiveness of Immersive and Non-Immersive Virtual Reality Interventions on Cognitive Function in People with Multiple Sclerosis: A Systematic Review
https://www.mdpi.com/2077-0383/15/12/4534

SUPPORT: National MS Society Research
https://nationalmssociety.org/research

JOIN: The RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

REVIEW: Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on X, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 464
Guest: Liat Shalom

WEBVTT

00:00:18.200 --> 00:00:21.480
It's July 21st, and we have a lot to talk about.

00:00:22.250 --> 00:00:26.550
If you've spent any time at all living with or caring for someone with multiple

00:00:26.550 --> 00:00:28.930
sclerosis, you know that medical

00:00:28.930 --> 00:00:33.250
textbooks and information-filled websites can only tell you so much.

00:00:33.860 --> 00:00:40.340
They give us facts, they give us figures and symptoms, but they rarely capture the sometimes messy,

00:00:40.740 --> 00:00:46.380
sometimes overwhelming, and sometimes darkly funny reality of what it actually

00:00:46.380 --> 00:00:52.280
feels like to get a diagnosis of MS and realize your life has suddenly shifted under your feet.

00:00:53.000 --> 00:00:57.740
My guest this week is Liat Shalom, an award-winning graphic novelist who was

00:00:57.740 --> 00:01:01.260
diagnosed with MS at the age of 30 in 2021.

00:01:01.900 --> 00:01:06.860
Instead of letting that diagnosis define her, Liat picked up her pen and created

00:01:06.860 --> 00:01:12.960
Unraveled, a groundbreaking graphic memoir that refuses to sugarcoat the MS experience.

00:01:13.580 --> 00:01:17.630
Whether you're newly diagnosed or you've been navigating this journey for decades,

00:01:17.880 --> 00:01:22.360
I think you're going to find Liat's perspective on using art to process trauma

00:01:22.660 --> 00:01:26.550
while finding a little humor along the way incredibly refreshing.

00:01:27.310 --> 00:01:31.570
We're going to talk about the graphic medicine movement, how to advocate for

00:01:31.570 --> 00:01:34.890
yourself when the medical jargon feels like a foreign language,

00:01:35.390 --> 00:01:41.280
and why she believes we need more honesty and less inspiration porn in the MS community.

00:01:42.050 --> 00:01:46.850
But before we get to my conversation with Liat Shalom, there are a few other

00:01:46.850 --> 00:01:48.900
things that you should know about. Thank you.

00:01:53.010 --> 00:01:57.990
About five years ago, evidence in a landmark study confirmed that the Epstein-Barr

00:01:57.990 --> 00:02:01.660
virus, or EBV, was a trigger for MS.

00:02:02.200 --> 00:02:04.710
Not the cause, but a necessary factor.

00:02:05.460 --> 00:02:09.970
Until recently, it wasn't clear how this virus interacted with the immune system.

00:02:10.360 --> 00:02:15.150
And this is important to understand when you realize that about 90% of the world

00:02:15.150 --> 00:02:22.770
population is carrying the Epstein-Barr virus, but far, far fewer people actually develop MS.

00:02:23.730 --> 00:02:27.550
Study results published just last week may provide those answers.

00:02:27.870 --> 00:02:33.020
Biologists discovered that in people living with MS, a specific type of immune

00:02:33.020 --> 00:02:41.270
cell, called CD4-plus T-cells, is hyperreactive to very specific parts of the Epstein-Barr virus.

00:02:42.220 --> 00:02:43.920
Up until now, scientists have

00:02:43.920 --> 00:02:48.360
focused heavily on the virus while it was dormant or latent in the body.

00:02:48.980 --> 00:02:54.320
But this new research reveals that the T-cells in MS patients are actually locked

00:02:54.320 --> 00:02:59.430
onto the proteins that form the outer shell of the virus when it's actively replicating.

00:02:59.980 --> 00:03:07.190
In fact, the researchers found 2.5 times more of these EBV-specific CD4-plus

00:03:07.190 --> 00:03:12.800
T cells in individuals with untreated MS compared to healthy controls.

00:03:13.790 --> 00:03:19.350
So why does this matter? Well, first, it maps out the exact biological mechanism

00:03:19.590 --> 00:03:26.590
that causes the immune system to misidentify brain tissue as an active threat and attack myelin.

00:03:27.220 --> 00:03:30.660
And second, identifying this precise target

00:03:30.980 --> 00:03:35.820
gives scientists a clear path for developing highly targeted therapies,

00:03:36.010 --> 00:03:42.860
antiviral immunomodulations, and specialized EBV vaccines designed to stop this

00:03:42.860 --> 00:03:45.910
specific reaction before it ever starts.

00:03:46.430 --> 00:03:50.550
And if there's no reaction to EBV, there's no MS.

00:03:51.270 --> 00:03:55.860
It's an incredibly hopeful milestone, and we'll be tracking how this translates

00:03:55.860 --> 00:03:58.390
into future research and clinical trials.

00:03:58.930 --> 00:04:04.200
If you'd like to review the details of the study, you'll find that link in today's show notes.

00:04:08.030 --> 00:04:12.290
Newly published study results address one of the most frustrating experiences

00:04:12.290 --> 00:04:17.930
for anyone living with MS, the sudden onset of symptoms that feel like a relapse

00:04:18.120 --> 00:04:21.620
but aren't necessarily caused by new disease activity.

00:04:22.060 --> 00:04:27.980
These pseudo-exacerbations or pseudo-relapses are often triggered by external

00:04:27.980 --> 00:04:34.460
factors like a fever, extreme heat, stress, or just sheer exhaustion.

00:04:35.030 --> 00:04:39.120
But they send the same neurological signals as a clinical relapse.

00:04:39.840 --> 00:04:44.160
Now, historically, the gold standard for confirming whether someone is experiencing

00:04:44.160 --> 00:04:48.270
a relapse or a pseudo-relapse has been an urgent MRI.

00:04:48.820 --> 00:04:52.870
But getting an MRI isn't always fast, easy, or affordable.

00:04:53.250 --> 00:04:58.040
So researchers at the Dallas VA Medical Center set out to see if a simple blood

00:04:58.040 --> 00:05:00.070
test could do the heavy lifting instead.

00:05:00.940 --> 00:05:06.520
They evaluated the Octave MSDA test to see if this blood test could accurately

00:05:06.520 --> 00:05:12.370
distinguish a true MRI-confirmed relapse from a pseudo-exacerbation,

00:05:12.950 --> 00:05:14.890
and the results are pretty compelling.

00:05:15.770 --> 00:05:20.660
The study found that the MSDA test was highly effective at identifying patients

00:05:20.880 --> 00:05:24.430
who had genuine MRI-confirmed disease activity.

00:05:24.970 --> 00:05:30.000
In fact, when the research team compared it to analyzing neurofilament light,

00:05:30.000 --> 00:05:35.810
which is considered a reliable biomarker signaling nerve damage in the central nervous system,

00:05:36.300 --> 00:05:41.340
the MSDA test showed greater accuracy in flagging active relapses.

00:05:42.350 --> 00:05:46.130
So what does this mean for someone living with MS today? Well,

00:05:46.130 --> 00:05:51.590
right now, if that person wakes up with new vision issues or weakness or numbness,

00:05:52.120 --> 00:05:58.400
the clinical default is either let's wait and see or let's schedule an MRI.

00:05:59.070 --> 00:06:03.010
This study suggests we're at a point in time when a blood draw could provide

00:06:03.010 --> 00:06:05.810
your care team with immediate, actionable data.

00:06:06.310 --> 00:06:10.310
And when the symptoms are shown to be just temporary pseudo-flares,

00:06:10.670 --> 00:06:15.250
this test could help someone avoid unnecessary courses of high-dose steroids,

00:06:15.510 --> 00:06:17.300
which carry their own side effects.

00:06:18.240 --> 00:06:22.320
Now, we aren't quite at the point when a blood test can replace the MRI,

00:06:22.890 --> 00:06:28.000
but the Octave MSDA test represents a major step toward more personalized,

00:06:28.280 --> 00:06:30.500
rapid decision-making in the clinic.

00:06:31.260 --> 00:06:35.630
It's about getting the right treatment at the right time and steering clear

00:06:35.630 --> 00:06:37.250
of the treatment you don't need.

00:06:37.980 --> 00:06:42.470
Just a reminder that the Octave MSDA test is not experimental.

00:06:42.690 --> 00:06:44.320
It's not investigational.

00:06:44.630 --> 00:06:47.770
It's not being tested. It's available today.

00:06:48.190 --> 00:06:53.770
And if you'd like to review the details of this study, you'll find that link in today's show notes.

00:06:58.150 --> 00:07:02.900
For 80 years, the National MS Society has reshaped the story of MS.

00:07:03.260 --> 00:07:07.910
Their efforts, their investments have fundamentally changed what it means when

00:07:07.910 --> 00:07:10.060
someone hears, you have MS.

00:07:10.620 --> 00:07:14.740
And if you'd like some perspective on this, just talk to someone who was diagnosed

00:07:14.740 --> 00:07:20.500
20 years ago and compare their experience, their options, to what they are today.

00:07:21.300 --> 00:07:26.070
You know, on this podcast, we often talk about the more than 20 different disease-modifying

00:07:26.070 --> 00:07:27.890
therapies that are available today.

00:07:28.580 --> 00:07:33.330
Well, society-funded research has contributed to the development of every one

00:07:33.330 --> 00:07:35.810
of those FDA-approved MS therapies.

00:07:36.660 --> 00:07:41.100
Today, the society is focusing its research investments on stopping MS,

00:07:41.470 --> 00:07:44.930
restoring lost function, and ending MS forever.

00:07:45.660 --> 00:07:51.480
More than half of the society-funded research projects are focused on stopping MS in its tracks.

00:07:52.080 --> 00:07:57.610
That means no new symptoms, no new damage, no more living with uncertainty.

00:07:58.440 --> 00:08:02.370
There are more than 30 projects being funded by the society that are advancing

00:08:02.370 --> 00:08:08.180
biomarker research that could detect MS earlier, and early intervention translates

00:08:08.180 --> 00:08:10.570
directly to a better outcome for the patient.

00:08:11.650 --> 00:08:15.960
More than 50 society-funded projects are working toward restoring myelin that's

00:08:15.960 --> 00:08:21.350
been damaged by MS, and that means restoring the function that MS has taken away.

00:08:22.220 --> 00:08:27.390
With 80 years of progress and over a billion dollars of research investment behind us,

00:08:27.720 --> 00:08:32.650
we're at a pivotal moment, a moment where you can step up and support research

00:08:32.650 --> 00:08:38.140
by supporting the organization that exists solely to support people affected by MS.

00:08:38.980 --> 00:08:45.160
Your support will go toward powering $119.6 million in active research,

00:08:45.400 --> 00:08:49.350
accelerating that work that brings us closer to ending MS.

00:08:49.970 --> 00:08:56.020
And when you give by July 31st, 100% of your gift will go to MS Research.

00:08:57.010 --> 00:09:01.960
If you're a regular listener, you know I rarely ask. But today I'm asking that

00:09:01.960 --> 00:09:08.520
if you're able, please visit nationalmssociety.org slash research and make your donation.

00:09:09.100 --> 00:09:11.850
And you'll find that link in today's show notes.

00:09:16.080 --> 00:09:20.280
If you're living with MS, you know that brain fog, that feeling of struggling

00:09:20.280 --> 00:09:24.590
with memory and focus, it's one of the most frustrating and one of the most

00:09:24.590 --> 00:09:29.560
common symptoms of the disease, affecting up to 70% of the MS population.

00:09:30.100 --> 00:09:33.800
And frankly, we've been short on medical options to treat it.

00:09:34.290 --> 00:09:38.310
But results of a new study suggest the answer might be found in a surprising

00:09:38.310 --> 00:09:40.550
place. Virtual reality.

00:09:41.290 --> 00:09:45.740
Researchers in Chile conducted a systematic review of 13 different clinical

00:09:45.740 --> 00:09:52.860
trials involving over 600 people with MS to see if VR-based rehabilitation actually

00:09:52.860 --> 00:09:56.250
improves cognitive function, and the results were clear.

00:09:56.720 --> 00:10:03.030
VR-based therapy is a safe, feasible, and effective tool for boosting brain health.

00:10:03.720 --> 00:10:08.740
Specifically, participants using VR platforms showed measurable improvements

00:10:08.740 --> 00:10:14.160
in processing speed, executive function, those are the skills we use to plan

00:10:14.160 --> 00:10:17.280
and organize, and visual spatial memory.

00:10:17.860 --> 00:10:22.150
That's your ability to recall objects and their locations in the world around you.

00:10:22.700 --> 00:10:25.880
So let's look at the benefits of VR-based rehabilitation.

00:10:26.690 --> 00:10:31.970
Traditionally, cognitive therapy can feel repetitive or disconnected from daily life.

00:10:32.550 --> 00:10:37.380
On the other hand, virtual reality offers what experts call ecological validity.

00:10:37.930 --> 00:10:40.170
It simulates real-world environments,

00:10:40.390 --> 00:10:44.530
like navigating a grocery store or managing a digital calendar.

00:10:45.210 --> 00:10:49.410
And that makes the training more engaging and impactful. In fact,

00:10:49.410 --> 00:10:53.830
the review found that adherence rates for these programs were over 80%.

00:10:54.710 --> 00:10:59.510
People stuck with it. Now, we aren't talking about a cure, and the research

00:10:59.510 --> 00:11:04.190
team emphasized that virtual reality should be considered a complementary tool.

00:11:04.690 --> 00:11:08.980
It works best when it's part of a broader care program with your occupational

00:11:08.980 --> 00:11:13.770
therapist or neurologist, but it's incredibly encouraging to see technology

00:11:13.770 --> 00:11:19.630
evolving to provide non-pharmacological ways to offset that MS-related brain fog.

00:11:20.380 --> 00:11:24.900
If you're feeling frustrated by cognitive slips, ask your care team if a cognitive

00:11:24.900 --> 00:11:30.160
rehab program or even a home-based teller rehab program could be the next step

00:11:30.160 --> 00:11:32.380
in your personal MS management plan.

00:11:32.960 --> 00:11:38.540
And if you'd like to review the details of this study, you'll find that link in today's show notes.

00:11:41.720 --> 00:11:45.930
If you happen to be a woman diagnosed with MS and you're between the ages of

00:11:45.930 --> 00:11:51.740
45 and 60 and are in the late reproductive stage, Early Perimenopause or Late

00:11:51.740 --> 00:11:54.320
Perimenopause Based on Menstrual History,

00:11:54.880 --> 00:11:59.350
you have an opportunity to participate in MS research from the comfort of your

00:11:59.350 --> 00:12:04.470
own home by completing three online surveys about perimenopause and MS.

00:12:05.410 --> 00:12:09.590
This national research study is being conducted by researchers at the University

00:12:09.590 --> 00:12:14.680
of Wisconsin-Madison, working with a team of national experts in MS neurology

00:12:14.680 --> 00:12:19.180
and women's health, and a community advisory board of women with MS.

00:12:19.640 --> 00:12:23.480
And the goal is to better understand the experiences, needs,

00:12:23.480 --> 00:12:28.660
and health changes of women with MS during the menopausal transition in order

00:12:28.660 --> 00:12:32.750
to develop and provide needed information and resources.

00:12:33.650 --> 00:12:38.890
Each survey respondent will complete three online surveys over a period of about 10 months.

00:12:39.380 --> 00:12:44.040
Each survey should take 20 to 30 minutes to complete, and a smaller group of

00:12:44.040 --> 00:12:48.510
participants will be invited to take part in a follow-up individual interview

00:12:48.860 --> 00:12:50.880
to share more about their experiences.

00:12:51.730 --> 00:12:55.870
Please also keep in mind that women who are currently pregnant or within 12

00:12:55.870 --> 00:12:59.390
months postpartum are not eligible to participate.

00:13:00.040 --> 00:13:04.530
If you do qualify to participate, please click on the link in today's show notes

00:13:04.530 --> 00:13:10.430
and become part of the research that's aiming to improve the lives of every woman living with MS.

00:13:11.310 --> 00:13:15.930
We often talk about the clinical side of MS on this show, the latest research,

00:13:15.930 --> 00:13:17.470
the breakthrough therapies,

00:13:17.980 --> 00:13:22.320
but there's a parallel journey that happens alongside those medical appointments,

00:13:22.560 --> 00:13:26.870
and that's the internal experience of living with an MS diagnosis.

00:13:27.630 --> 00:13:32.130
My guest, Liat Shalom, decided to document that experience in a way most people

00:13:32.130 --> 00:13:34.720
don't, through the lens of a graphic novel.

00:13:35.320 --> 00:13:39.750
Her memoir, Unraveled, uses illustration to capture the raw,

00:13:39.750 --> 00:13:45.010
unfiltered, and sometimes darkly humorous moments of life with MS that just

00:13:45.010 --> 00:13:48.190
don't fit into anyone's standard medical chart.

00:13:49.100 --> 00:13:51.310
In a moment, we'll meet Liat Shalom.

00:13:54.750 --> 00:13:58.910
Liat Shalom describes herself as an award-winning graphic novelist,

00:13:58.910 --> 00:14:06.080
MS advocate, and professional smartass who was diagnosed with multiple sclerosis at 30 in 2021.

00:14:06.930 --> 00:14:11.450
Rather than letting the diagnosis define her, Liat picked up her pen and began

00:14:11.450 --> 00:14:15.480
documenting her journey in a graphic memoir titled Unraveled.

00:14:16.110 --> 00:14:17.430
Welcome to the podcast, Liat.

00:14:18.140 --> 00:14:20.710
Thank you for having me. I'm excited to be here.

00:14:21.450 --> 00:14:26.570
Well, let's start way back in the beginning. Before you were diagnosed in 2021,

00:14:26.570 --> 00:14:29.200
you actually worked in film and TV production.

00:14:29.750 --> 00:14:34.970
What made you choose to share your MS journey through a graphic novel rather

00:14:34.970 --> 00:14:37.550
than a script or traditional documentary?

00:14:38.930 --> 00:14:44.020
When I got sick, so first of all, when you get sick, there's a period of brain

00:14:44.020 --> 00:14:49.580
inflammation where the processing of information is very difficult.

00:14:49.580 --> 00:14:53.220
So I remember getting sick and having this,

00:14:54.080 --> 00:15:00.140
probably a year period where I couldn't really read long, convoluted medical

00:15:00.140 --> 00:15:06.160
texts with a lot of big words I didn't understand. It was just all gibberish to me.

00:15:06.550 --> 00:15:11.680
And I remember thinking to myself like having a visual would be very helpful

00:15:11.680 --> 00:15:15.190
right now while I was in the hospital in recovery.

00:15:16.240 --> 00:15:19.910
And there was nothing available. And I kept asking my doctors,

00:15:19.910 --> 00:15:24.600
like, is there anything? Because My neurologist had an attitude,

00:15:24.600 --> 00:15:30.160
and it's probably the best piece of advice I was ever given, to not Google MS.

00:15:30.760 --> 00:15:31.670
Couldn't agree more.

00:15:32.510 --> 00:15:36.680
Yeah. So he told me when I got sick, you have MS.

00:15:37.230 --> 00:15:41.280
Here's a bunch of information you can read. Don't Google it.

00:15:42.200 --> 00:15:47.170
Don't look it up online. And I was an inpatient during COVID.

00:15:47.500 --> 00:15:53.470
So I wasn't interacting with any other patients. And that probably worked a

00:15:53.470 --> 00:15:59.730
little bit to my advantage because I had no idea what was ahead of me and how it was going to look.

00:16:00.360 --> 00:16:06.700
Well, I know that your MS diagnosis came after you took a fall and a misdiagnosis

00:16:06.700 --> 00:16:13.110
at a concussion clinic where they completely just wrote off all your symptoms.

00:16:13.950 --> 00:16:21.230
Um i was lucky that they even noticed i had a concussion but i remember meeting

00:16:21.230 --> 00:16:27.810
up with a doctor at a certain hospital and telling him i was first dizzy,

00:16:28.440 --> 00:16:35.860
then i fell not i fell hit my head and became dizzy so i tried explaining this to him,

00:16:36.450 --> 00:16:41.650
but he he wrote that off as this is long-term post-concussion syndrome,

00:16:42.040 --> 00:16:44.240
and throughout two years, he kept seeing

00:16:44.240 --> 00:16:48.740
me and sending me for cognitive assessment, and I was getting worse.

00:16:49.980 --> 00:16:52.170
And at no point did it, like,

00:16:53.050 --> 00:16:58.980
throw up the red flag of like, this patient needs an MRI or needs further testing.

00:16:58.980 --> 00:17:06.100
So it's a typical MS story in that regard of, I think a lot of us get misdiagnosed

00:17:06.100 --> 00:17:10.060
and it's always a battle to get to the diagnosis.

00:17:12.250 --> 00:17:17.180
So I wanted to share my personal battle, make others understand that like the

00:17:17.180 --> 00:17:22.950
confusion is part of the MS and other people go through it too.

00:17:23.330 --> 00:17:28.220
And we all share the same indignities of the disease.

00:17:29.610 --> 00:17:35.320
And I just, I kind of created my own community by making the book and sharing it online.

00:17:35.910 --> 00:17:41.430
So how did you channel the frustration of not being heard by the medical community

00:17:41.900 --> 00:17:44.760
into the early pages and sketches of Unraveled?

00:17:46.570 --> 00:17:52.220
I definitely documented my hours in the emergency room.

00:17:53.330 --> 00:17:59.240
In particular, I was in Canada, the system's very overwhelmed,

00:17:59.240 --> 00:18:07.800
and I was 17 hours in an emergency room hallway until I got an MRI. It was quite insane.

00:18:08.140 --> 00:18:14.360
So documented that, documented the procedures of going in and not being heard

00:18:14.360 --> 00:18:16.700
and meeting with the same doctor over and over.

00:18:18.010 --> 00:18:25.350
That was very frustrating. And sadly, in Canada, you can't sue a doctor.

00:18:25.350 --> 00:18:30.820
You can't really seek any legal retribution against any medical professionals.

00:18:32.230 --> 00:18:36.930
So I really had to channel everything into the book because there was no other way to be heard.

00:18:37.670 --> 00:18:45.100
Your portfolio features a great illustration that maps MS symptoms directly onto the body.

00:18:45.940 --> 00:18:49.990
Now, medical illustration is usually very cold and clinical,

00:18:50.310 --> 00:18:55.700
but yours balances health communication with really deep artistic expression.

00:18:56.370 --> 00:19:01.590
How do you approach drawing something abstract and frustrating like nerve pain

00:19:01.590 --> 00:19:05.190
or brain fog or tingling sensations?

00:19:06.290 --> 00:19:11.070
Um i'm you i'm drawing a lot from comic book language that's why i feel like

00:19:11.070 --> 00:19:13.710
graphic novel is the perfect medium for this,

00:19:14.480 --> 00:19:19.380
um and maybe later i'll be able to translate the feelings into a script but

00:19:19.700 --> 00:19:22.190
i really felt like certain things,

00:19:23.000 --> 00:19:27.810
like the the tingling in the hands there's no better way to show it than like

00:19:27.810 --> 00:19:34.040
the little zigzags and the doubling of lines and i find myself describing being

00:19:34.040 --> 00:19:36.000
to my neurologist things in a very,

00:19:36.700 --> 00:19:39.460
visual way when I go in anyways.

00:19:39.950 --> 00:19:45.680
So I felt like I wanted to bridge our conversation, the medical jargon,

00:19:45.680 --> 00:19:49.030
and what I'm actually feeling into visuals.

00:19:50.060 --> 00:19:54.750
MS can drastically affect manual dexterity and energy levels.

00:19:55.600 --> 00:20:00.250
What did the actual physical act of sketching and coloring look like for you

00:20:00.250 --> 00:20:02.390
on days when your body wasn't cooperating?

00:20:03.120 --> 00:20:10.400
So my diagnosis was extremely complex. I had a very strong onset of MS due to

00:20:10.400 --> 00:20:11.450
a different medication.

00:20:11.450 --> 00:20:18.770
I won't get into the whole history, but I had body paralysis on the entire right side of my body.

00:20:19.100 --> 00:20:24.420
I'm right hand dominant. So I essentially overnight couldn't walk,

00:20:24.420 --> 00:20:27.930
couldn't use my hand, lost my career.

00:20:29.220 --> 00:20:34.970
Even before I figured out what a mess was I figured out I can no longer go to

00:20:34.970 --> 00:20:42.080
set and work 12 to 14 hours a day according to my film contract so that was just.

00:20:43.390 --> 00:20:49.170
A very sad morning period and and then once I finished that that kind of sadness that I,

00:20:49.930 --> 00:20:54.300
came on for like a few weeks and started dealing with the mood swings,

00:20:54.300 --> 00:20:56.500
which was another thing I wasn't aware of.

00:20:57.450 --> 00:21:02.740
Um, I, and I started working with an OT at a hospital called Bridgepoint,

00:21:02.740 --> 00:21:04.760
which was a lifesaver for me.

00:21:05.330 --> 00:21:10.760
Um, me and her sat down and, uh, wrote down goals. She wrote down goals.

00:21:11.510 --> 00:21:16.010
And, uh, I told her that my goal is to be able to, to draw again.

00:21:16.010 --> 00:21:23.380
And we started slowly working on like here's the circle here's the line um let's

00:21:23.380 --> 00:21:29.300
you know so we slowly started incorporating that into my recovery and when I did that I was,

00:21:29.780 --> 00:21:36.550
extremely motivated again and uh I just I made it a goal when I was in recovery

00:21:36.960 --> 00:21:42.010
to not only use my hand again but be able to illustrate a full graphic novel,

00:21:42.620 --> 00:21:46.720
um when I left the hospital and started physically drawing again,

00:21:46.720 --> 00:21:49.840
I realized it was a lot more difficult.

00:21:49.840 --> 00:21:52.390
I do have my handshakes.

00:21:52.970 --> 00:21:57.820
I have dexterity issues that sadly never went away fully.

00:21:58.190 --> 00:22:07.670
So for me, it was figuring out what technology I could use to correct what my hand was doing.

00:22:08.290 --> 00:22:15.400
And luckily, I found the iPad and the iPad has a stabilization feature when

00:22:15.400 --> 00:22:18.810
you're drawing that counteracts the MS.

00:22:19.850 --> 00:22:25.390
So it created a situation where I could draw the way I naturally draw.

00:22:26.490 --> 00:22:33.350
And it was just amazing. So I started learning this new tool and took me about four.

00:22:33.350 --> 00:22:36.470
I thought it would take like one year and I was very optimistic.

00:22:36.470 --> 00:22:41.690
But four years later, the book is finally coming to close to a wrap.

00:22:41.690 --> 00:22:44.140
I'm hoping to get to print by October.

00:22:45.060 --> 00:22:51.390
Well, as you point out on your website, which our listeners can find at unraveledgraphicnovel.com,

00:22:51.860 --> 00:22:56.980
mainstream media often flattens chronic illness stories into two extremes,

00:22:57.560 --> 00:23:03.240
either a devastating tragedy or an overly sanitized, my goodness,

00:23:03.240 --> 00:23:05.920
you're so brave, inspirational piece.

00:23:06.400 --> 00:23:12.840
Your stated goal is to show that life with MS is messier, funnier, and more human.

00:23:13.460 --> 00:23:18.430
So how did dark humor become such an important survival tool for you?

00:23:19.100 --> 00:23:28.310
I think just being of the cultural background that I am, which is, uh, I grew up in Israel.

00:23:28.310 --> 00:23:33.670
I'm an immigrant from a not very beloved country and, uh,

00:23:34.460 --> 00:23:40.360
and working in film and just everything I've been through has made me very resilient,

00:23:40.360 --> 00:23:43.490
but also have like a very positive and, uh,

00:23:44.280 --> 00:23:48.460
And kind of look at the humor and things attitude about life.

00:23:48.720 --> 00:23:53.520
And I think it made me be able to accept the MS diagnosis.

00:23:53.520 --> 00:23:59.980
For me, it was like developing a radical acceptance and then finding humor in

00:23:59.980 --> 00:24:04.830
it. And I think my neurologist was kind of shocked how I would make like really

00:24:04.830 --> 00:24:06.670
dark jokes with him right away.

00:24:08.010 --> 00:24:13.040
And I saw it created like a happier atmosphere for the staff as well.

00:24:13.040 --> 00:24:17.040
Because I feel like they'd come into my room and they'd be all sad,

00:24:17.040 --> 00:24:20.260
like, oh, my God, you're so young. This is so sad. And I'm like,

00:24:21.020 --> 00:24:25.220
let's, you know, try to find a different way to frame things because I really

00:24:25.220 --> 00:24:26.880
didn't like that narrative.

00:24:28.050 --> 00:24:34.850
So really, I feel like my whole project and my existence and way of being is about thriving with MS.

00:24:35.470 --> 00:24:38.750
Well, I just heard you use that term radical acceptance.

00:24:39.110 --> 00:24:42.870
I wanted to ask you about it because I know you've spoken about that concept

00:24:43.210 --> 00:24:47.180
as a means of thriving with MS rather than just surviving.

00:24:47.550 --> 00:24:49.640
What does radical acceptance mean

00:24:49.640 --> 00:24:53.970
to you in practice, and how does that philosophy show up in Unraveled?

00:24:54.850 --> 00:24:59.210
Um, radical acceptance, funny enough, comes from,

00:25:00.160 --> 00:25:07.550
the idea of, of accepting the things you cannot change, um, and finding the

00:25:07.550 --> 00:25:10.190
most positive way to deal with them.

00:25:10.810 --> 00:25:16.100
But also pushing yourself. And for me, that's what it was.

00:25:16.100 --> 00:25:22.410
It was accepting it and then finding a new way to frame my life and push myself

00:25:22.410 --> 00:25:26.650
to do great things within my new abilities.

00:25:27.340 --> 00:25:32.840
Unraveled functions as both a personal memoir and a user-friendly roadmap for

00:25:32.840 --> 00:25:36.790
patients, families affected by MS, and healthcare providers.

00:25:37.520 --> 00:25:43.390
If someone who's been newly diagnosed picks up your book, what do you hope they take away from it?

00:25:44.170 --> 00:25:47.740
I hope they take away from it, first of all, that they're not alone.

00:25:48.270 --> 00:25:52.570
The exact same confusing things are happening to other people.

00:25:54.510 --> 00:25:58.480
And you will, at the end, find a way to cope. It gets better.

00:25:59.440 --> 00:26:04.850
Um i heard the word progressive when i got sick and it really upset me because,

00:26:05.420 --> 00:26:11.260
when i was sick my neurological condition at the time before i started biologic

00:26:11.260 --> 00:26:18.160
medication was so bad that i felt like i lost all capacity to understand life,

00:26:19.060 --> 00:26:24.530
um and i felt very alone like it was uh like i said it was covid i couldn't

00:26:24.530 --> 00:26:30.850
have visitors i couldn't interact with other patients, it was like the extreme of isolation.

00:26:32.060 --> 00:26:36.870
It was difficult to accept that I had MS at 30 years old.

00:26:37.730 --> 00:26:46.030
I remember having a lot of questions about the future, and the doctors and nurses

00:26:46.030 --> 00:26:50.020
are very encouraging about one step at a time, and, you know,

00:26:50.020 --> 00:26:52.140
don't freak out about the bigger picture.

00:26:53.250 --> 00:26:57.280
But it is very difficult not to do. So I wanted to create a book where people

00:26:57.280 --> 00:27:03.390
could kind of skim forward to the end or to the middle and find where they are

00:27:03.390 --> 00:27:06.780
and that it does get better in the process.

00:27:07.440 --> 00:27:12.220
Okay. Now, on the flip side, what do you hope neurologists, physical therapists,

00:27:12.220 --> 00:27:16.230
occupational therapists, and other healthcare providers learn about the patient

00:27:16.230 --> 00:27:18.290
experience by reading Unraveled?

00:27:19.370 --> 00:27:24.940
I hope that they see the patient as a whole. I find that different doctors have

00:27:24.940 --> 00:27:32.770
different specialties and they tend to let's say the neurologist sometimes will know a lot about,

00:27:33.450 --> 00:27:39.670
the medication treatment but he won't know anything about the diet treatment

00:27:39.670 --> 00:27:42.340
or alternative therapies,

00:27:43.510 --> 00:27:48.670
and I find that in the MS community there's kind of an attitude of one or the other.

00:27:49.110 --> 00:27:53.590
People tend to be either very, I'm doing everything naturally,

00:27:53.990 --> 00:27:57.870
or I'm going exactly by what the doctor says.

00:27:59.090 --> 00:28:04.670
I do both. I found the middle, and it works for me, and I hope I can share my

00:28:04.670 --> 00:28:06.390
experiences with others.

00:28:06.390 --> 00:28:12.380
It's a very snowflake disease. We're all different, so what works for me might

00:28:12.380 --> 00:28:18.170
not work for others, but I want to be a positive inspiration in our community.

00:28:19.020 --> 00:28:22.600
I think that artists learn about themselves through their work.

00:28:23.300 --> 00:28:28.130
Looking back at your journey from your diagnosis back in 2021 to releasing this

00:28:28.130 --> 00:28:32.860
graphic novel, what did you take away from the process of writing and drawing Unraveled?

00:28:33.540 --> 00:28:37.950
The book developed as I was learning the disease, really.

00:28:37.950 --> 00:28:41.670
So it's just been an interesting learning curve.

00:28:41.670 --> 00:28:45.970
And I feel like this book will probably be like the first of a series because,

00:28:46.410 --> 00:28:52.100
again, the disease progresses and hopefully the medication will get better and

00:28:52.100 --> 00:28:53.910
maybe even a cure, you know, so,

00:28:54.670 --> 00:28:57.640
lots of room to grow the book, hopefully in the future.

00:28:58.610 --> 00:29:05.130
But I hope that what I've learned, essentially, what I've learned,

00:29:05.130 --> 00:29:07.390
well, sorry, that's a really difficult question.

00:29:08.900 --> 00:29:15.740
I've learned how to manage the disease. And I've learned that we're a community

00:29:15.740 --> 00:29:22.360
that shares information from one to the other that doctors wouldn't necessarily know.

00:29:22.360 --> 00:29:27.880
So I think I've learned that the community aspect of our disease is extremely important.

00:29:28.360 --> 00:29:34.210
And I've seen it by the reactions of readers to my, well, the book isn't out

00:29:34.210 --> 00:29:36.470
yet, but the Instagram pages.

00:29:36.870 --> 00:29:43.300
And I get responses from people that like found my page and are newly diagnosed

00:29:43.300 --> 00:29:51.310
and feel like they're less alone and found the community and understand what's happening better um so,

00:29:51.970 --> 00:29:54.140
that's that's all I could have asked for,

00:29:55.440 --> 00:30:01.680
that's what I'm learning is that as terrifying as it was for me it's it feels the same for everyone.

00:30:02.590 --> 00:30:06.740
We've been discussing the graphic novel, Unraveled. I've already ordered my

00:30:06.740 --> 00:30:11.920
copy, and you can order yours by visiting unraveledgraphicnovel.com.

00:30:12.540 --> 00:30:16.930
Liat Shalom, thank you for raising awareness by sharing your MS journey through

00:30:16.930 --> 00:30:21.000
a fairly unique medium, and thanks so much for talking with me today.

00:30:22.070 --> 00:30:24.740
Thank you so much for having me. It means so much.

00:30:25.610 --> 00:30:30.290
That's going to wrap up this episode of Real Talk MS. Real Talk MS is powered

00:30:30.290 --> 00:30:32.020
by the National MS Society.

00:30:32.440 --> 00:30:36.570
And you can share this episode of the podcast by letting your friends or family

00:30:36.570 --> 00:30:44.380
members know that all they have to do is point their web browser at realtalkms.com slash 464.

00:30:44.930 --> 00:30:49.100
You'll find that link in today's show notes, so you can easily copy and paste

00:30:49.100 --> 00:30:51.500
it right into an email or a text.

00:30:52.710 --> 00:30:56.940
I think that it's human nature to understand things from the perspective of

00:30:56.940 --> 00:30:58.600
where we happen to be planted.

00:30:59.370 --> 00:31:03.820
If you're living in the U.S., you tend to think about MS research and MS care

00:31:04.120 --> 00:31:07.170
in terms of the healthcare system here in the United States.

00:31:07.670 --> 00:31:11.170
And if you're living in a European nation, you think about those things as they

00:31:11.170 --> 00:31:13.380
relate to healthcare in the European Union.

00:31:14.240 --> 00:31:19.240
So step back for a moment and try to consider what MS care might be like from

00:31:19.240 --> 00:31:21.910
the perspective of Tibetan society.

00:31:22.600 --> 00:31:27.820
My guest next week is Dr. Avinash Chandra, an MS specialist who trained at a

00:31:27.820 --> 00:31:30.600
world-class MS center in the United States,

00:31:30.870 --> 00:31:37.990
only to return home to Tibet to discover that MS was officially considered non-existent in his country.

00:31:38.740 --> 00:31:41.520
This is a conversation you won't want to miss.

00:31:42.490 --> 00:31:49.070
I'm Jon Strum. Thanks for listening. Stay safe and make healthy choices.