Past Episodes

359
July 15, 2024

Episode 359: The Unraveling with Dr. Nara Michaelson

As Harvard Fellow Dr. Nara Michaelson treated women who had been recently diagnosed with MS, she recognized they shared characteristics that she had observed in victims of violent domestic abuse. Dr. Michaelson's observation led her to write The Unraveling, an essay that highlights the fear that can accompany the uncertainty of living with MS. Dr. Michaelson joins me to discuss the experiences that led to her award-winning essay and to share resources that can help maintain your emotional healt...
Episode 359: The Unraveling with Dr. Nara Michaelson
RealTalk MS
Episode 359: The Unraveling with Dr. Nara Michaelson
358
July 8, 2024

Episode 358: VISIBL-MS with Dr. Jaime Imitola

The inequities associated with gaining access to quality healthcare are often discussed, and my guest this week has taken steps to address them. Dr. Jaime Imitola and his team at UCONN Health have created a tool called VISIBL-MS, a bilingual framework designed to increase doctors' and patients' awareness of the early signs of MS. We'll also share the results of a study that clearly illustrate progression independent of relapse activity (PIRA). We'll tell you about a small study that showed a p...
Episode 358: VISIBL-MS with Dr. Jaime Imitola
RealTalk MS
Episode 358: VISIBL-MS with Dr. Jaime Imitola
356
June 24, 2024

Episode 356: A Final Conversation with National MS Society President and CEO, Cyndi Zagieboylo

Over the course of her 39-year career with the National MS Society, including the past 13 years as its President and CEO, Cyndi Zagieboylo has been a driving force behind major initiatives that have fundamentally changed the MS treatment and research landscape. Creating a world where cures for MS are now within reach, Cyndi has led the work to make living with MS better today than it's ever been. On July 1, Cyndi is retiring from her remarkable career at the National MS Society. I had an opport...
Episode 356: A Final Conversation with National MS Society President and CEO, Cyndi Zagieboylo
RealTalk MS
Episode 356: A Final Conversation with National MS Society President and CEO, Cyndi Zagieboylo
355
June 17, 2024

Episode 355: The NARCOMS Patient Registry with Dr. Robert Fox

Research is the engine that drives the future. And participating in MS research is not only vital to improving scientists' understanding of multiple sclerosis, it's also empowering. And the really good news is that you can participate in MS research from the comfort of your own home. My guest this week is the Managing Director of the North American Research Committee on Multiple Sclerosis, Dr. Robert Fox. And we're taking a deep dive into the NARCOMS patient registry. We'll also tell you about...
Episode 355: The NARCOMS Patient Registry with Dr. Robert Fox
RealTalk MS
Episode 355: The NARCOMS Patient Registry with Dr. Robert Fox
354
June 10, 2024

Episode 354: From the Consortium of MS Centers 38th Annual Meeting -- Part 2

Two weeks ago, thousands of clinicians, nurses, physician's assistants, rehabilitation experts, and others traveled to Nashville to attend the Consortium of Multiple Sclerosis Centers 38th Annual Meeting. This is Part 2 of our coverage from that meeting. In this episode, we're sharing our conversations with some of the experts who were at the meeting to present their research. You'll hear the National MS Society's Executive Vice President for Advocacy and Healthcare Access, Bari Talente, share...
Episode 354: From the Consortium of MS Centers 38th Annual Meeting -- Part 2
RealTalk MS
Episode 354: From the Consortium of MS Centers 38th Annual Meeting -- Part 2
353
June 3, 2024

Episode 353: From the Consortium of MS Centers Annual Meeting with Dr. Kathy Zackowski and Dr. Stephen Krieger

Last week, thousands of clinicians, nurses, physician's assistants, rehabilitation experts, and others traveled to Nashville to attend the Consortium of Multiple Sclerosis Centers 38th Annual Meeting. Welcome to Part 1 of our coverage from that meeting. In this episode, I'm talking with Dr. Kathy Zackowski, Associate Vice-President for Research at the National MS Society, and Dr. Zackowski is sharing some of the presentations that caught her attention. Next, you'll hear my conversation with Dr...
Episode 353: From the Consortium of MS Centers Annual Meeting with Dr. Kathy Zackowski and Dr. Stephen Krieger
RealTalk MS
Episode 353: From the Consortium of MS Centers Annual Meeting with Dr. Kathy Zackowski and Dr. Stephen Krieger
352
May 27, 2024

Episode 352: World MS Day with Rachel Horne

May 30th is World MS Day, and we're taking this opportunity to look at some of the challenges faced by people with MS around the world. Global economics and the peculiarities of different healthcare systems make fundamental issues like access to quality healthcare and affordable MS medications difficult for many and impossible for some. U.K. journalist and MS activist Rachel Horne joins me for a freewheeling conversation focused on the broad range of challenges that people with MS face every da...
Episode 352: World MS Day with Rachel Horne
RealTalk MS
Episode 352: World MS Day with Rachel Horne
351
May 20, 2024

Episode 351: Managing Stress When You're Living with MS with Dr. Grace Tworek

We've reached a moment in time when it seems impossible to avoid at least some level of stress in our lives. We also know that stress has been shown to make MS symptoms worse and even trigger relapses. We can't eliminate all the stress in our lives, so learning how to manage and minimize stress is an important part of living well with MS. This week, Dr. Grace Tworek, a Clinical Health Psychologist at the Mellen Center for Multiple Sclerosis at the Cleveland Clinic, joins me to talk about best p...
Episode 351: Managing Stress When You're Living with MS with Dr. Grace Tworek
RealTalk MS
Episode 351: Managing Stress When You're Living with MS with Dr. Grace Tworek
350
May 13, 2024

Episode 350: Choosing Your MS Disease-Modifying Therapy with Dr. Barbara Giesser

There are more than 20 disease-modifying therapies available to treat MS today. Some are considered high-efficacy, some are considered moderately effective, and each has its own risk profile and side effects to consider. So, how do you choose? How much homework should someone living with MS do? Where should you look for reliable information? And what if you and your neurologist don't necessarily agree? Joining me to talk about your role when it comes to choosing the right DMT through shared de...
Episode 350: Choosing Your MS Disease-Modifying Therapy with Dr. Barbara Giesser
RealTalk MS
Episode 350: Choosing Your MS Disease-Modifying Therapy with Dr. Barbara Giesser
349
May 6, 2024

Episode 349: From the International Advisory Committee on Clinical Trials in Multiple Sclerosis Aging and MS Workshop (Part 2)

As we age, our bodies undergo biological changes. Our immune system changes. Our brain changes with age. Our cognitive abilities change, as do our physical abilities. These changes impact everyone. But these biological processes may impact people with MS differently. And MS may impact these biological processes differently. Just a couple of weeks ago, the International Advisory Committee on Clinical Trials in MS brought together 100 top experts for a 3-day workshop dedicated to exploring how th...
Episode 349: From the International Advisory Committee on Clinical Trials in Multiple Sclerosis Aging and MS Workshop (Part 2)
RealTalk MS
Episode 349: From the International Advisory Committee on Clinical Trials in Multiple Sclerosis Aging and MS Workshop (Part 2)