Past Episodes
173
Dec. 21, 2020
Episode 173: Creating the COVID Vaccine Guidance for People with MS with Dr. Nancy Sicotte
It's safe to say that this year, the biggest gift of the holiday season has been the arrival of not one, but two COVID-19 vaccines. Still, while the COVID-19 vaccines have created a tremendous amount of hope, they've also created an equal number of questions among people who are living with MS. So the National MS Society has convened a group of experts to provide guidance for people living with MS when it comes to making decisions about the safety, efficacy, and the timing of COVID-19 vaccines a...
172
Dec. 14, 2020
Episode 172: Preventing Holiday (and Pandemic) Stress with Megan Weigel, DNP, ARNP-C
Feeling some of the stress and anxiety that often come with the holiday season? Who could blame you? If the holidays aren't enough, this year, we're also going through what's looking like the worst part of the COVID-19 pandemic. Stress and anxiety aren't guaranteed, but they aren't exactly unexpected, either. My guest this week, Megan Weigel, is here to share some techniques and strategies that we can use to de-stress during the holidays. Megan is a nurse practitioner specializing in neurologi...
171
Dec. 7, 2020
Episode 171: The Country with One of the Highest Rates of MS in the World with Dr. Pamela Valentine
Every day, 12 more Canadians are diagnosed with multiple sclerosis. Facing one of the highest MS rates in the world, spread across a geographically large country, the MS Society of Canada is the only national voluntary organization in Canada that supports cutting-edge MS research while providing services and support to more than 90,000 people living with MS. Joining me as my guest is Dr. Pamela Valentine, who is not only the president & CEO of the MS Society of Canada but also a multi-award win...
170
Nov. 30, 2020
Episode 170: Managing MS Pain with Dr. Dawn Ehde and Dr. Heidi Maloni
MS-related pain is one of those invisible symptoms that can have a profound impact on your quality of life. So we're devoting this entire episode of RealTalk MS to taking a deep dive into assessing and managing MS-related pain with my guests, Dr. Dawn M. Ehde and Dr. Heidi Maloni. Both of my guests are experts at assessing, treating, and managing MS-related pain, but each approaches pain from a slightly different perspective. Dr. Ehde is a clinical psychologist and professor of rehabilitation m...
169
Nov. 23, 2020
Episode 169: MSTranslate with Brett Drummond
Joining me this week is Brett Drummond, a scientist in Australia who stepped away from his lab to develop an online resource designed to bridge the gap between the MS patient community and the MS research community. The result of his efforts is MSTranslate. We're talking about this excellent curated MS information resource, and Brett even shares some insights into the MS research that he finds particularly exciting. We're also talking about the research team that used human stem cells to create...
168
Nov. 16, 2020
Episode 168: Remyelination in MS with Dr. Jeffrey Cohen and Dr. Ian Duncan
Today, remyelination holds real promise as a strategy for restoring lost function and slowing or even stopping MS progression. This week, we're taking a deep dive into the current state of remyelination research. Joining me are Dr. Jeffrey Cohen, the Hazel Prior Hostetler Professor of Neurology at the Cleveland Clinic and the director of the Cleveland Clinic's Mellen Center for Multiple Sclerosis Treatment and Research, and Dr. Ian Duncan, a neuroscientist, and Professor of Neurology at the Uni...
167
Nov. 9, 2020
Episode 167: A Veteran's MS Journey with Karla Clay, Capt USAF
November 11 is Veterans Day in the United States, giving us an opportunity to honor the men and women who have served in America's armed forces. More than 70,000 U.S. veterans are living with MS, and joining me on the podcast is Karla Clay, an Air Force veteran, and a National Veterans Wheelchair Games multiple medal winner. We're talking about the life-changing turn that Karla's MS journey ended up taking. As of today, the fate of the Affordable Care Act and the legal protections for people wi...
166
Nov. 2, 2020
Episode 166: Managing MS-Related Fatigue with Dr. Bardia Nourbakhsh and Dr. Kathy Zackowski
Fatigue is considered to be the most common MS symptom and also one of the most disabling because fatigue can interfere with every aspect of someone's life -- at home, at work, in their relationships -- in every way, fatigue can have a profound impact on your quality of life. We're talking about how to best manage MS-related fatigue with two experts on the subject, Dr. Bardia Nourbakhsh, and Dr. Kathy Zackowski. Remembering Karen Jackson We're also remembering Karen Jackson, an MS activist, ti...
165
Oct. 28, 2020
Episode 165: Understanding MS Clinical Research with Dr. Sandi Cassard and Diane Kramer
Almost everything that we've learned about multiple sclerosis is the result of people with MS choosing to participate in clinical research. When it comes to MS and most every other chronic illness, clinical research is the common denominator of all medical progress. This week, we're breaking down the details of MS clinical research with my guests, Dr. Sandi Cassard, a research associate in the Neurology department at Johns Hopkins School of Medicine, and Diane Kramer, who has participated in mo...
164
Oct. 19, 2020
Episode 164: Understanding Pediatric MS with Hannah Schnitzler, Melissa Fisher, and Dr. Brenda Banwell
MS doesn't only affect individuals. It affects families. And that's probably most clear when we're talking about pediatric MS. The National MS Society estimates that there are about 5,000 diagnosed cases of pediatric MS in the United States and less than 10,000 cases worldwide, but those numbers become far less important when your child is one of those diagnosed cases. We're taking a deep dive into pediatric MS with Hannah Schnitzler, who lives with pediatric MS, Hannah's mom, Melissa Fisher, an...