Past Episodes
35
May 23, 2018
Episode 35: Day One of the International Progressive MS Alliance Scientific Congress on MS Rehabilitation & Symptom Management
Today -- and every day this week -- the RealTalk MS podcast is coming to you from the Sheraton Centre Hotel in Toronto, Canada, where the International Progressive MS Alliance is holding its 3rd Scientific Congress. The theme of the event is Making a Difference Through Rehabilitation & Symptom Management. The first day of the Scientific Congress featured amazing presentations, insightful panel discussions, world-renowned MS researchers, and even a couple of robots! Topics included how brain reh...
34
May 22, 2018
Episode 34: From the International Progressive MS Alliance Scientific Congress on MS Rehabilitation & Symptom Management
Today -- and every day this week -- the RealTalk MS podcast is coming to you from the Sheraton Centre Hotel in Toronto, Canada, where the International Progressive MS Alliance is holding its 3rd Scientific Congress. The theme of the event is Making a Difference Through Rehabilitation & Symptom Management. In today's podcast, you'll hear from a renowned progressive MS researcher who is leading an international team of experts in a 3-year research study. You'll also hear from a trio of rehabilita...
33
May 21, 2018
Episode 33: From the International Progressive MS Alliance Scientific Congress on Rehabilitation & Symptom Management
Today -- and every day this week -- the RealTalk MS podcast is coming to you live from the Sheraton Centre Toronto Hotel in Toronto, Canada, where, tomorrow, the International Progressive MS Alliance kicks off its 3rd Scientific Congress. The theme of the event is Progressive MS -- Making a Difference Through Rehabilitation & Symptom Management, and on today's podcast episode, we're previewing some of what the attendees will be seeing and hearing. We're also talking about several MS rehabilitat...
32
May 14, 2018
Episode 32: MS Rehabilitation & Symptom Management
Living your best life while you're living with MS means learning how to manage and overcome the physical and psychological limitations that MS tries to impose. This week's guest, Dr. Kathleen Zackowski, Senior Director of Patient Management, Care, and Rehabilitation Research for the National MS Society, takes us on a deep dive into MS rehabilitation & symptom management. We're also talking about the FDA approval of Gilenya for treating Pediatric MS, President Donald Trump's announced "blueprint...
31
May 7, 2018
Episode 31: David Mitchell & Patients For Affordable Drugs
In 2004, the average wholesale price of available MS disease-modifying therapies was $16,000. In 2013, the average price was $61,000; last year, the average price was more than $83,000. That's why my guest this week is David Mitchell, founder and president of Patients for Affordable Drugs. We're also talking about the RealTalk MS Podcast Alexa Skill! If you already own an Amazon Echo, Dot, or any Alexa-enabled device, you can access all sorts of convenient features for listening to RealTalk MS!...
30
April 30, 2018
Episode 30: Dr. Matthew Miles & MS Research Australia
We have a lot to talk about in this podcast episode! First, a big announcement...the RealTalk MS Podcast has its own Amazon Alexa Skill! If you already own an Amazon Echo, Dot, or any Alexa-enabled device, you can access all sorts of convenient features for listening to RealTalk MS! (And if you don't yet have an Alexa-enabled device, this might be one more reason to get one!) My guest on the podcast is Dr. Matthew Miles, the CEO of MS Research Australia, the largest non-profit organization dedi...
29
April 23, 2018
RealTalk MS Episode 29: New Treatment Guidelines For MS Announced
The American Academy of Neurology (AAN) is holding its Annual Meeting this week in Los Angeles. And with more than 10,000 neurologists all in one place, we're talking about a LOT of news coming out of that conference. Just some of the topics we're talking about on this week's podcast: The AAN announced new guidelines for treating MS. A new study will convince you to begin MS disease-modifying therapy sooner, rather than later. The National MS Society has announced $14.2 million dollars in fu...
28
April 16, 2018
RealTalk MS Episode 28: Pediatric MS With Dr. Emmanuelle Waubant
When we think about MS, we tend to think about it as an adult disease. But the National MS Society reminds us that between 8,000 and 10,000 children up to 18 years old are living with MS in the United States. And studies suggest that between 2 and 5% of everyone living with MS has a history of experiencing the onset of at least one MS symptom before the age of 18. My guest on the podcast is Dr. Emmanuelle Waubant, one of the true pioneers and experts in the field of pediatric MS. We're talking ...
27
April 9, 2018
RealTalk MS Episode 27: Tech Tools To Manage MS
As technology advances at an ever increasing rate, it's speeding up the pace of scientific discovery. In this week's podcast, we're looking at new tech tools -- smartphone apps, desktop programs, and mobile technology -- that will change the way you manage MS fatigue, anxiety, foot drop, MS rehab, and more. And you'll meet this week's guest, Jayce Riley, an MS Road Warrior who is preparing to ride his bike 3,785 miles across the United States to honor his late mother, and raise money for MS res...
26
April 2, 2018
RealTalk MS Episode 26: Stephanie Buxhoeveden Is An MS Nurse Who Also Happens To Have MS
My podcast guest Stephanie Buxhoeveden was diagnosed with MS when she was 25 years old, working as a neurosurgical ICU nurse. Today, Stephanie is a board-certified Multiple Sclerosis Nurse, she is a Nurse Practitioner and she is the Co-Director of the MS Comprehensive Care Center where she has also been a patient. Stephanie will share some of her experiences and observations from the dual perspective of someone who is a medical specialist who treats patients with MS, and also someone who lives ...