Past Episodes
16
Jan. 22, 2018
RealTalk MS Episode 16: Robots & Rehabilitation With Dr. Maja Mataric
Robots?? Really??? The answer is YES! Dr. Maja Mataric joins us on the podcast, and we're talking about how socially assistive robots could be real game-changers for people living with MS and other chronic conditions, as well as their caregivers. We're breaking down the specific ways that the new U.S. tax code will impact people living with MS. We're also talking about how the FDA just raised a red flag for one stem cell treatment for MS that made promises it wasn't keeping. And we'll tell you ...
15
Jan. 15, 2018
RealTalk MS Episode 15: We Are Illmatic
Jon's guest on the podcast is Victoria Reese, founder of the We Are Illmatic campaign. We Are Illmatic is building awareness and providing support for women of color who are living with MS in their lives. We have good news about the U.S. Defense Department's MS Research Program, and the passage of the bipartisan RAISE Caregivers Act. We'll tell you how an MS patient's handwriting may predict a decline in movement, sensory, and cognitive skills. And we'll share some interesting research about a...
14
Jan. 8, 2018
RealTalk MS Episode 14: New Year News Roundup
It's a new year and we have a lot to talk about! There's good news about new clinical trials...the FDA has given a "Breakthrough Therapy" designation for the first MS treatment approved for children and teens living with MS...UCLA researchers have identified why estrogen seems to have real potential as a treatment for MS...prices for some MS drugs are going up...pharmaceutical companies are suing the state of California over prescription price transparency...and host Jon Strum will tell you why ...
13
Dec. 11, 2017
RealTalk MS Episode 13: The International Progressive MS Alliance With Prof. Alan Thompson
The International Progressive MS Alliance is an unprecedented global alliance of MS organizations, researchers, clinicians, pharmaceutical companies, and people living with progressive MS, transforming the landscape of multiple sclerosis. This week, we're talking about the work and the progress of the Alliance with Professor Alan Thompson, Dean of Faculty of Brain Sciences at University College London, and Chair of the Alliance's Scientific Steering Committee. We're also talking about a study p...
12
Dec. 4, 2017
RealTalk MS Episode 12: The Difference Between Men and Women With MS
Multiple sclerosis affects men and women differently. Women are 3 times more likely to get MS, but men often develop more significant disabilities from MS. This week's guest, Dr. Rhonda Voskuhl, is a trailblazer in not only exploring the differences between the sexes in MS, but in identifying what seems to be a safe and effective treatment for MS symptoms. So why aren't pharmaceutical companies lining up to bring this treatment to market? Hear what Dr. Voskuhl has to say about that and more in t...
11
Nov. 27, 2017
RealTalk MS Episode 11
Whether it's research, news, or even pending legislation, there's a lot happening around the world that's going to impact families living with MS. In this week's podcast, we'll round up some of that news and bring you up to speed on some of the things that you ought to know about. We're talking about how the pending income tax legislation can be financially devastating to families living with MS - and we'll explain what you can do about it right now. We'll look at a new clinical trial testing a...
10
Nov. 21, 2017
RealTalk MS Episode 10: Caregiving
November is National Family Caregivers Month, and we're talking all about caregiving. Being a caregiver for a family member with MS or any chronic illness can be one of the greatest blessings that a person may receive. It can also be one of the most stress-producing, anxiety-creating, and even life-threatening undertakings that a person may endure. No one ever applies to be a caregiver, and the job doesn't come with an instruction manual. So we're going to be discussing: The real costs -- both ...
9
Nov. 14, 2017
RealTalk MS Episode 9: MS & Depression
Experts estimate that about 50% of the people living with MS are impacted by depression. And left untreated, depression can darken your entire outlook on the world. It has a way of making everything less. We're going to explore MS and depression with my guest, Dr. Amy Sullivan, Director of Behavioral Medicine at the Mellen Center for Multiple Sclerosis at the Cleveland Clinic. We're also talking about a study that may offer some good news about what seems to be a highly effective drug therapy f...
8
Nov. 6, 2017
RealTalk MS Episode 8: The MS MOSAIC Study
This week's guests are Doctors Lee Hartswell and Katherine Heller, the co-primary investigators of the MS MOSAIC study from Duke University. Everyone listening to our podcast is eligible to participate in this study -- even if you don't have MS. And all of the data collection will be done through your smartphone, so you won't even have to leave home! More than just a study that will help us learn a lot about day-to-day living with MS, the MS MOSAIC study is a perfect example of how we're going t...
7
Oct. 30, 2017
RealTalk MS Episode 7: ECTRIMS Round-Up
Last week, more than 9,000 MS research scientists, physicians, and pharmaceutical industry experts attended ECTRIMS-ACTRIMS, the largest annual international MS research conference in the world. And we're devoting this week's podcast episode to talking about what they were talking about! Welcome to the RealTalk MS ECTRIMS Round-Up! You'll find out about how the "official" number of people with MS in the United States is now more than double what it was before last week. We'll talk about some of...