Past Episodes
207
Aug. 16, 2021
Episode 207: The Benefits of Art and Music Therapy in MS with Dr. Meera Rastogi, Veronica DeNoma, and Betsy Hartman
Imagine being able to see improvement in cognition, motor function, and self-esteem, while enhancing neurological functions like walking and speech without taking another pill or even breaking a sweat. Joining me to talk about the evidence-based benefits that people living with MS can gain through music and art therapy are Dr. Meera Rastogi, Veronica DeNoma, and Betsy Hartman. We're also talking about the shocking and deeply concerning outcome of a study used to validate the reliability of a n...
206
Aug. 13, 2021
Episode 206: The Importance of Advocacy with MS Activist Jenna Green
If you've ever wondered about whether MS advocacy makes a real difference, please consider that last year alone, MS Activists helped to bring about these changes: $10 Million increase in funding for the Congressionally-Directed MS Research Program $3 Billion increase in funding for the National Institutes of Health Sustained funding for the CDC's National Neurological Conditions Surveillance System (studying MS is one of the first 2 pilot projects for this new program) Passage of the CREATES...
205
Aug. 2, 2021
Episode 205: A Potentially Transformational Therapy for Progressive MS with Samantha Singer and Dr. Richard Ransohoff
Just a few weeks ago, life sciences company Abata Therapeutics came out of stealth mode, unveiling a $95 million dollar investment in a novel cell therapy to treat progressive MS. Joining me to talk about this potentially transformational treatment for progressive MS are the President and CEO of Abata Therapeutics, Samantha Singer, and Dr. Richard Ransohoff, one of the company's co-founders as well as its Chief Medical Officer. We'll also give you a sneak peek at a study that measured the impa...
204
July 26, 2021
Episode 204: Creating Greater Diversity and Ensuring Patient-Centricity in MS Clinical Research with Tanja Keiper
Research shows that members of minority communities often experience MS differently. And by differently, we mean worse. -- more severe symptoms, shorter time to disability, and greater levels of disability. That's why ensuring greater diversity in clinical research is of urgent importance. At the same time, the conversation about putting the patient at the center of MS research has grown louder and more pronounced. Major pharmaceutical companies have gotten both of these messages and joining m...
203
July 19, 2021
Episode 203: How To Enjoy Summer Activities While Staying Safe and Keeping Cool with Dr. Colin Lenington
Summertime traditionally means getting out of the house, enjoying outdoor activities, and being active. But if you're living with MS, outdoor activity and summertime temperatures can raise red flags when it comes to your day-to-day quality of life. My guest is Dr. Colin Lenington, an Occupational Therapist and Clinical Specialist at the VA Long Beach Healthcare System and we're talking about getting outside, staying safe, and keeping cool while you enjoy your summer activities. We're joining t...
202
July 16, 2021
Episode 202: The MS Prodrome with Dr. Helen Tremlett
In medicine, a prodrome is a set of signs or symptoms that can appear years before the major symptoms of an illness develop. Recognizing the prodromal phase of MS could mean that, one day, someone who is highly likely to be diagnosed with multiple sclerosis could receive proactive treatment years in advance and, perhaps, never develop any MS symptoms. Dr. Helen Tremlett, a professor, and the Canada Research Chair in Neuroepidemiology and Multiple Sclerosis at the University of British Columbia,...
201
July 5, 2021
Episode 201: Our Conversation with Charcot Award Recipient Professor Alan Thompson
Every two years, the MS International Federation awards the Charcot Award, recognizing lifetime achievement in outstanding research into the understanding and treatment of MS. My special guest is this year's recipient of the Charcot Award, Professor Alan Thompson, who is being honored for what is truly a remarkable body of work. We'll also share some encouraging news from the FDA about a biomarker for progressive MS clinical trials. We'll tell you about the outcome of a study that shows high-e...
200
June 28, 2021
Episode 200: Celebrating 200 Episodes of RealTalk MS with National MS Society CEO Cyndi Zagieboylo
We're celebrating the 200th episode of RealTalk MS by sitting down with Cyndi Zagieboylo, the President and CEO of the National Multiple Sclerosis Society, and looking at some of the most vital initiatives ever undertaken by the National MS Society, including the launch of the International Progressive MS Alliance, the MS Society's efforts to support diversity, equity, and inclusion throughout the MS movement and in MS clinical research, and the groundbreaking Pathways to Cures blueprint. Over ...
199
June 21, 2021
Episode 199: MS and the LGBTQ+ Community with Matoaka Kipp
Receiving an MS diagnosis can be frightening. And receiving that diagnosis as a young adult can feel like your whole world just got flipped upside down. When Matoaka Kipp (she/her/hers) received her MS diagnosis at the age of 21, she not only had to come to terms with how that diagnosis would change her life but as a member of the LGBTQ+ community, Matoaka also had to confront some of the systemic inequities of our healthcare system. Matoaka joins me this week to share her MS journey. We're al...
198
June 14, 2021
Episode 198: Anxiety and Depression in MS with Dr. Anthony Feinstein
At some point, about 50% of the people living with MS will experience clinical depression. This goes beyond simply feeling sad. Left unchecked, MS-related depression can sometimes lead to tragic consequences. As it relates to multiple sclerosis, mental health must be de-stigmatized, studied more rigorously, and discussed more often. Returning to the podcast to talk about managing the mood-related symptoms of MS is Dr. Anthony Feinstein, a Professor of Psychiatry at the University of Toronto an...