Research Insights Episodes
Delve into discussions about recent research findings, emerging therapies, and expert insights that shape the understanding of multiple sclerosis.
72
Jan. 7, 2019
Episode 72: MS Cognitive Rehabilitation with Dr. Nancy Chiaravalloti
Some people living with MS may find that their attention span is shorter than it used to be, or that it takes them longer to process information. Learning directions can be hard, and decision-making may become more difficult. These are all examples of impaired cognition, or cognitive dysfunction. Cognitive dysfunction can impact people living with relapsing-remitting MS, and it impacts almost everyone living with progressive MS. My guest is Dr. Nancy Chiaravalloti, the Director of Neuropsycholo...
71
Dec. 30, 2018
Episode 71: Our Look Back at 2018
It's our final episode of the year, and we're taking a look back at what you decided were the most important RealTalk MS podcast episodes of the past year. These are the episodes that received the highest number of listener downloads. We're also polishing our crystal ball, taking a look ahead to 2019, and talking about some of the research that we can expect to be hearing about. We'll even share some of the specific topics that we'll be discussing on the podcast in the coming year. Thanks to y...
70
Dec. 23, 2018
Episode 70: When A Couple Is Living With MS with Dan & Jennifer Digmann
The holiday season seems to carry with it the message of hope, and of finding the best side of who we are. So one of the gifts that I'm going to unwrap with you is a replay of a conversation that I had earlier this year, with 2 people who epitomize hope, humanity, and love. To me, that's what the holiday is all about, and that's what Dan and Jennifer Digmann are all about. Jennifer was diagnosed with Progressive MS in 1997, and Dan was diagnosed with relapsing-remitting MS in 2000. Dan & Jennif...
68
Dec. 10, 2018
Episode 68: MS & AI with Dr. Chase Spurlock, CEO of iQuity
Artificial intelligence is about to change the entire healthcare landscape. And that might very well include how MS is diagnosed, treated, and managed. It's even beginning to impact the way some MS research is being conducted. My guest is the founder and CEO of iQuity, Dr. Chase Spurlock. iQuity is using its expertise in machine learning to improve patient care, drive the creation of new therapies, and reduce the costs associated with managing chronic illness, including multiple sclerosis. We'r...
67
Dec. 3, 2018
Episode 67: MS Research with Dr. Larry Sherman
Research is the engine that drives us toward better understanding MS, better treating MS, and one day, curing MS. My guest on the podcast is Dr. Larry Sherman, who plays a vital role on the front lines of MS research. We're talking with Dr. Sherman about some of his most significant research and his unique research lab. We're also talking about two important victories for MS Activists. We'll tell you about the EMA approval of Gilenya for treating pediatric MS, the FDA approval of a generic for ...
64
Nov. 12, 2018
Episode 64: Patient-Driven MS Drug Development with Laura Kolaczkowski
Patient-centered research is based on an understanding that patients themselves have unique perspectives that can help to mold, change, and improve the work of finding answers to clinical questions. My guest on the podcast is Laura Kolaczkowski, the co-Principal Investigator for iConquerMS. We're talking about the impact this people-powered research network is having on MS research, and how the first ever patient-driven MS drug development project came about. We'll also help you wade through th...
53
Sept. 17, 2018
Episode 53: iConquer MS with Dr. Robert McBurney & David Gwynne
I spent this past weekend attending the iConquer MS Leadership Summit in Boston. iConquer MS is a people-powered research network created by the Accelerated Cure Project for MS. Instead of just asking people with MS to provide data, iConquer MS is driven by people living with MS, and it represents a new paradigm of building collaborative partnerships to solve big healthcare questions. This past spring, I had an in-depth conversation with Dr. Robert McBurney, CEO of the Accelerated Cure Project ...
52
Sept. 10, 2018
Episode 52: Enjoying the Ride with MS Activist & Author Mitch Sturgeon
My guest on the podcast is Mitch Sturgeon. Mitch is an award-winning blogger, and with the publication of his book, Enjoying the Ride: Two Generations of Tragedy and Triumph, Mitch is a published author, as well. In 2001, Mitch was diagnosed with Primary Progressive MS. He was 35 years old at the time, and that was the same age that Mitch's mother was when she took a fall that left her a quadriplegic. Mitch's book is more than just a reflection of his MS journey. It's a story about a family wit...
51
Sept. 3, 2018
Episode 51: MS Research From Australia with Dr. Lisa Melton
MS Research Australia has published a report titled, Health Economic Impact of Multiple Sclerosis in Australia 2017. The report provides a detailed snapshot of the economics behind MS, looking at employment, quality of life issues, and even calculating the cost per person living with MS in Australia. The report concludes with some powerful recommendations for future steps. My guest is Dr. Lisa Melton, Head of Research at MS Research Australia, and we're talking about what this report is telling...
48
Aug. 13, 2018
Episode 48: The Intersection of Art & Science with Elizabeth Jameson
Elizabeth Jameson is an artist who specializes in creating a bridge between art and neuroscience. Since being diagnosed with MS, Elizabeth has transformed her brain MRI scans into remarkable and provocative images that challenge how we view the brain, disability, and illness. In addition to creating her amazing artwork, Elizabeth is an ePatient Scholar and advisor to Stanford Medicine X, and she's written extensively about patient-centered healthcare, design, and the arts. This week, we're sta...